Issue 54: Ways to Survive ASD Parenting and Stay Thankful
Issue 58: Winning Ways to Share the Love with All of Your Children
Issue 81: When Special Education Fails to Be Special
I know it has been a while since my last update, but not much has changed, which in our lives is a good thing! Ok, we have had some crazy behavior issues the last few weeks with the anticipation of summer, but what Florida teenager isn't bouncing off the walls and "over it' when it comes to getting up early and going to school everyday as it is so beautiful outside and Adventure Island is open?
Today we saw the GI doctor for the first time since his G-tube replacement surgery on April 14th. Been loving the new button tube by the way. Anyway, on April 14th, he weighed 70.6 pounds. At today's visit, he weighed 75.24 pounds! That's 4.64 pounds in just over one month! Yes, I did that math!
The new goal? 92 pounds! At 92 pounds, we can remove the tube altogether. At this rate of weight gain, that's in about 4-5 months. So he needs to eat 1,800 calories a day.
Of course, with every praise comes a prayer request. Jerry has a nasty granuloma growing around his port. Click here for more information on just what that is. Basically, his body is trying to close the hole it knows should not be there by growing extra skin. This is causing some irritation and making the site sensitive.
We are trying a steroid cream to shrink the tissue. If that doesn't work, the doctor will use Silver Nitrate to cauterize it. It's similar to removing a wart and involves a significant amount of stinging for a time afterwards. Hence, prayer request. Please pray that the steroid cream shrinks the tissue. Poor guy has had enough pain for a while. And said doctor talked about the stinging in front of him so I don't need to tell you how adamant he is that burning that skin off is NOT going to happen.
Also pray we, Jeremiah, his classmates, and his teachers/therapists survive the rest of this week...the last week of school! I will update everyone on how he ended this school year next week!
I am a Christian. I am a wife. I am a mom. I am an author. In that order.