Issue 54: Ways to Survive ASD Parenting and Stay Thankful
Issue 58: Winning Ways to Share the Love with All of Your Children
Issue 81: When Special Education Fails to Be Special
We knew this was coming. Honestly, I am almost relieved it is finally here. Jerry has been admitted into the hospital once again. He is down to a weight lower than when he left the hospital back in July. He is not eating, unless it is applesauce cups for the last 4 days now. His gastric emptying scan from a few weeks ago was normal so that has been ruled out.
The plan right now is to do a colonoscopy, endoscopy, and repeat the small bowel follow through to see if his SMAS has returned. We arrived after his GI appointment this afternoon and he is now again acquainted with his nemesis, the feeding tube. He received it like a champ, along with his IV. They are running the liquid Miralax through him to clean him out now and hopefully testing can begin tomorrow.
The colonoscopy was the one test never run so we are hoping to finally get some real answers. They stopped tests when they diagnosed the SMAS, but the bottom line is, the SMAS was just a result of the not eating. We never did figure out why he stopped eating in the first place. Praying the colonoscopy has some answers to that mystery for us.
If the colonoscopy is clear, well then we begin looking at whether or not this is a sensory issue or possibly ecen behavioral. I will be surprised though. He says everything he eats hurts and cries at the table in front of his food because he is hungry and wants to eat it, but says he just cannot.
So here we are again. This time, we left a sick cat and a brother with the flu at home. Michaela said she played a mom in her Peter Pan play so she can play one again at home while I am here at the hospital with Jerry. Blessed.
I am a Christian. I am a wife. I am a mom. I am an author. In that order.