Rainbow-Colored Grass

Here We Go Again...

1/30/2017

We knew this was coming. Honestly, I am almost relieved it is finally here. Jerry has been admitted into the hospital once again. He is down to a weight lower than when he left the hospital back in July. He is not eating, unless it is applesauce cups for the last 4 days now. His gastric emptying scan from a few weeks ago was normal so that has been ruled out.

The plan right now is to do a colonoscopy, endoscopy, and repeat the small bowel follow through to see if his SMAS has returned. We arrived after his GI appointment this afternoon and he is now again acquainted with his nemesis, the feeding tube. He received it like a champ, along with his IV. They are running the liquid Miralax through him to clean him out now and hopefully testing can begin tomorrow.

The colonoscopy was the one test never run so we are hoping to finally get some real answers. They stopped tests when they diagnosed the SMAS, but the bottom line is, the SMAS was just a result of the not eating. We never did figure out why he stopped eating in the first place. Praying the colonoscopy has some answers to that mystery for us.

If the colonoscopy is clear, well then we begin looking at whether or not this is a sensory issue or possibly ecen behavioral. I will be surprised though. He says everything he eats hurts and cries at the table in front of his food because he is hungry and wants to eat it, but says he just cannot.

So here we are again. This time, we left a sick cat and a brother with the flu at home. Michaela said she played a mom in her Peter Pan play so she can play one again at home while I am here at the hospital with Jerry. Blessed.

11 Comments

grace hutchinson

1/30/2017 03:28:02 pm

Aw Tara! I don't have any answers for you except that Jerry is in God's hands but then you know that....so trust in the Lord....and He will walk with you as you take this journey once again...relax and eat Reeses! 😨

Denise Haynes

1/30/2017 04:02:30 pm

My dear Tara, I have had some of the most trying few days with my special little ones thus far. Asking God why, questioning his plan, questioning what our future is going to look like, generally feeling very sorry for myself with way too much self-righteousness anger mixed in. I had no plans to open fb tonight because of time constraints, but God orchestrated a few minutes so I'd see your post and it would be the socially divine slap in the face I needed to put my reality back into perspective. My specials are doing homework (albeit reluctantly and with lots of spectrum-related smart-alecness) and playing cheerfully in the bathtub. We are home, had dinner together, and everyone will sleep in their comfy beds tonight. My grumblings have suddenly become praises of thanksgiving. My self-centered thoughts have become prayers for Jerry, you, and the rest of the family. I'm so sorry for what Jerry is having to endure, yet again. I'm so sorry for the fear, grief, loneliness, worry, loss of sleep, anxiety, etc., etc., etc. that you're going through, mama. I get it. I've been there. Who knows if my prayers will be answered, but I know they're being heard and the Lord is close to the broken-hearted. You inspire me to do better and be better. Love you, my friend!

Tara Bertic

1/30/2017 04:07:00 pm

Thank you Denise! Your love, prayers, support, and words of encouragement mean more than you know. Love you!

Jeanne Wood

1/30/2017 04:10:42 pm

Oh Tara - our thoughts and prayers go out to you and the entire family. Please please please do not hesitate to call us even if you need a break or just want a visit from a slightly insane teenager who adores Jerry and the family. Seriously -- our love and prayers to all. Hugs.

Sandy Moss

1/31/2017 06:03:40 am

Loving you - hug Jerry for me! Call if I can help in any way. Praying there are answers soon.

Pam Proctor

1/31/2017 06:59:33 am

Adding my prayers to all the others. And a memory.

A similar issue for me when I was a little girl (I think between 5 and 8). Although my Mom cooked the best food (she still does) after dinner my belly hurt so much that I'd just cry. It came to the point that I didn't want to eat because I knew it would hurt.
I remember the "test" that made me gag and the needle that either gave or took something from my arm. The doctor prescribed some pills (they told me it was "stomach acid"). But God is the One Who healed.

He still does.

Much love to ya'll.

Karen McLeod

1/31/2017 02:22:19 pm

I can't believe the faith, courage and strength you and John have had through this whole ordeal. I admire you all so much . It breaks my heart to see a child have to go through any illness. Im not sure Im sending this right. but I hope so. Love ya

Gramma Bertic

1/31/2017 02:26:32 pm

Oh. I am so sorry to hear that all of you have to go thru this again especially Jerry. I hope they finally fiqure out what is wrong with him and fix it, I have been praying for him and will continue. Love you guys.

rita & bob olson

1/31/2017 05:13:25 pm

John,Tara and Family,
We are sorry to see you all going through this again. We are praying that our Lord will lead the doctors to the cause, and that He will heal Jerry.
Please call if we can do anything for any of you.
Love & Blessings, rita & bob

Helen Mathis

1/31/2017 07:27:24 pm

Keeping your whole family in my prayers. Fixing our eyes on Jesus and handing everything over to him is the only way I survive with what I deal with. You have such a sweet heart. Jerry is in good hands with the doctors and God will guide them on what each step needs to me. Hugs

Anna Woods

2/1/2017 02:29:39 pm

I am so sorry for what you and Jerry are going through. God is our great physician so I pray He will bring healing to Jerry. God loves him so. You are in our prayers.

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