Issue 54: Ways to Survive ASD Parenting and Stay Thankful
Issue 58: Winning Ways to Share the Love with All of Your Children
Issue 81: When Special Education Fails to Be Special
Discouraging news today. Jerry couldn't eat anything past midnight last night and they wiped him down with antiseptic wipes twice since then to prepare him for his G-tube placement this morning.
We get to pre-op, see the doctor, and are just waiting for them to take him back when he tells us he has to pee. When he gets up from the gurney we see blood. And the back of his underwear are soaked as well. I didn't say anything in front of him because I didn't want him to freak out, but I got a nurse who got the doctor. He decided that the procedure needs to be postponed until we figure out why he is bleeding. So back to his room we go.
After examining him, it's determined he has a bad hemorrhoid that is bleeding. But to make sure that is all it is, they are running cultures on his stool for a staph infection called C-diff and other bacterial infections. Because all of his biopsies returned normal, it is not pathological. And it is likely not C-diff because he is presenting no other symptoms at this time, but they have to be absolutely sure.
In the meantime, he is in isolation, meaning no more walks, trips to the playground or basketball court, or Child Life activities. In his words, "This sucks." Mrs. Kim was here and tried to encourage him by helping him think of things that "don't suck." He said God hates him. Makes my heart hurt for him. We just sat in his bed and cried together. It does suck. He has that right. But as Kim reminded me before she left, ALL things. For whatever reason, Jerry was not meant to get the G-tube this morning and we are meant to be here a while longer.
Because the results from the culture take 48 hours to come back (the C-diff only an hour), his G-tube insertion is now scheduled for Wednesday morning, barring any other complications or delays. Then Thursday morning they start his feeds in the new port and, if all goes well, we will go home Friday.
Poor guy is standing next to his bed now because it hurts to sit on his bottom. I am discouraged. He is too. We just want to go home. Instead, I gotta put on my happy mom face, find a positive in all of this, and become very entertaining for a 14-year-old's amusement. Lol!
Update: They just came in and said the C-diff test was negative. Guess I have my first positive, huh? Thank you Jesus.
I am a Christian. I am a wife. I am a mom. I am an author. In that order.