Issue 54: Ways to Survive ASD Parenting and Stay Thankful
Issue 58: Winning Ways to Share the Love with All of Your Children
Issue 81: When Special Education Fails to Be Special
Still no answers. But we may be getting closer. They took little man down for his MRI around 2 today. He handled the no food or drink beforehand pretty well. He is so tired from all of the interrupted sleep that they had a hard time waking him after the procedure. They were just about to give him something to counteract the anesthesia when he finally woke up.
Back in the room, the GI doctor decided it was time to get some calories back in him. They will not let him go home until he is gaining weight again. They started Pediasure in his feeding tube. They started at a very slow drip with the intent of increasing incrementally every hour.
By the time they reached maximum dosage hour, he was green. Thus the picture of him hugging the toilet. And yes, i realize hugging a hospital toilet is unsanitary, but it's what makes him feel most comfortable when his stomach is making him feel the most miserable. He kept trying to get up and make it back to bed, almost willing himself not to get sick, but in the end, the Pediasure got the better of him. It has to run until 2 am, but they backed the dosage down. Praying that keeps the Pediasure down!
But while vomiting is no fun...for any party involved in the act or the cleaning up of said act, we are praying this gives the GI some clear direction. She did say that if he threw up the Pediasure, it would help her eliminate certain possible culprits for his nausea and weight loss issues. We'll see.
Tomorrow morning sometime the upper GI procedure is happening, where she will get a clear look at his liver, gall bladder, kidneys, and stomach. While we obviously want there to be nothing wrong with Jeremiah, we are ready for them to figure out exactly what is going on and then devise a plan to fix it. Two weeks ago we had to buy Jerry size 8 Garanimals pants people....Garanimals! My kids haven't worn those in YEARS. But Jerry was walking around one-handed as he needed the other one to hold his pants up. I do not want to downsize the drawers again!
A few bright sides and entries for the thankful journal...ESPN's Speed Channel on cable TV here at the hospital had Monster Jam on yesterday. The only downside for Jerry was that, because he had an IV, he could not flap his hands and jump up and down.
Also, this hospital stay already has last Christmas beat in the way of gifts received. Being a cute fourteen-year-old skinny boy with long eyelashes and stuck in the hospital in the middle of summer pays dividends. He has puzzles, gift cards, candy, remote control cars, stuffed animals, and even a motorcycle helmet as part of his sympathy stash. He has reached the point where he asks now what someone bought him when they arrive to see him. Apparently, there is a visiting tax one must pay.
Thank you everyone for your prayers, texts, offers of help, visits, and even dinner for my other babies stuck at home alone while John and I are at the hospital with Jerry. I'll keep everyone posted.
I am a Christian. I am a wife. I am a mom. I am an author. In that order.