Issue 54: Ways to Survive ASD Parenting and Stay Thankful
Issue 58: Winning Ways to Share the Love with All of Your Children
Issue 81: When Special Education Fails to Be Special
We have been home three days now and Jerry is getting around better. He is at least standing up straight and walking a little bit faster than Tim Conway on the Carol Burnett Show. Wow. That just dated me, didn't it?!
Anyway, we are home, we are surviving on the new diet, and the shock of it all is finally starting to wear off as we settle back into routine. Tomorrow Jerry even returns to school. And I say that "we" are surviving the shock of the new diet because this really is a family thing. We are all adapting to what Jerry can eat at home, out at restaurants, and when at others' homes.
We saw the GI doctor today for his follow-up and he is at 68.2 pounds, a few less than what he was discharged from the hospital at, but with the change in diet, I think that is to be expected at first. It has been a frenzy of Pinterest and Google around here to figure out what he can and cannot eat. Thankfully, the dietician at the hospital gave me her cell number should I have any questions. She is likely regretting that decision right about now!
We follow up with the GI again in 5 weeks when we will schedule Jerry for a one-day outpatient surgery at St. Joseph's to get his G-tube replaced with a button-style one. Basically, the extra "appendage" now dangling about 7" from his belly will be gone and just a button-style protrusion will be there as a feeding port instead.
When does that one get removed? That is the million dollar question. It's all up to Jerry I suppose and how quickly he gets back to eating normally and gaining some serious weight. And so the journey continues.
I am a Christian. I am a wife. I am a mom. I am an author. In that order.