Issue 54: Ways to Survive ASD Parenting and Stay Thankful
Issue 58: Winning Ways to Share the Love with All of Your Children
Issue 81: When Special Education Fails to Be Special
Let's play a game. It's called Things That Weigh 62 Pounds. You guess of things and I'll give you my list. We'll see how close you come to guessing right.
A Royalite Dumoine canoe is 16'4" and weighs 62 pounds. The average Italian eats about 62 pounds of pasta per year. The Sunpentown upright freezer weighs 62 pounds. The average 8-year-old weighs 62 pounds. 56 pounds of ice displaces 62 pounds of water. (Thank you Token Fat Guy blog for those random facts.) What else weighs 62 pounds? Better yet, who else? Yep, you guessed it...the only person who actually lost weight over the holidays...Jeremiah.
He had his GI follow-up appointment today and he is down from 70.6 to 62.6. Do the math and you know he has lost 8 pounds since he last saw the doctor. This is less than he ever got down to even in the hospital last summer.
We kind of figured. He's been looking scrawny and sickly again, his lips are chapped from dehydration, and his behavior and mood have been all over the place. He is also complaining of his stomach hurtingall the time. Actually, he says everything hurts. Today in the car he said, "Mom, my eyebrows hurt."
The doctor is doing blood and fecal tests tomorrow morning. She is also scheduling a gastric emptying scan to see if his stomach is maybe emptying too slowly, which would explain him never being hunrgy and saying he feels sick after he does eat. Dependng on what the fecal sample shows, a colonoscopy may be on the menu as well. Until then, he is to eat and drink as much as he can and wants. Unfortunately, that is not very often. That's the problem. It's not like we are starving the poor child. We offer him food all the time and even make emergency grocery store trips to get foods that he mentions he might want to eat. He speaks, we jump all the way to Publix.
He returns to the GI next Thursday. If he has not gained any weight, or has lost weight, he will be admitted back into the hospital and likely placed on a feeding tube again. She had no explanation for the possible gastric emptying issue and even suggested the SMAS was close to being an issue again. I told her how difficult the feeding tube was with sleeping and school, dragging the feeding pole up and down the stairs, and with it continually slipping out of place. She said if it gets to the point of needing another feeding tube, they will consider the semi-permanent kind they surgically put in his stomach. It is more discreet, easier to deal with, and can be left in much longer...until he is completely well again.
At the thought of another possible hospital stay, Jerry naturally burst into tears. He doesn't want to go back, but says he just can't eat. We just don't know what to do anymore. He says he's either not hungry or his stomach hurts. Praying for clear results from this new set of tests. We don't want old year problems in the new one!
To top things off, Jerry stopped all of his medications, including his seizure medications on New Year's Day. He flat out refuses to take them. He says they make him sick. We have tried bribing, threatening (following through on some of those threats), and begging...all to no avail. Dr. Foradada sees him this next Monday for a check-up to assess what may be going on. Praying he doesn't have a seizure before then.
Again, never a dull moment!
I am a Christian. I am a wife. I am a mom. I am an author. In that order.